The BS of my MS

I was diagnosed with Multiple Sclerosis April 11, 2006. It was a fairly quick diagnosis and there are days/weeks I can mostly ignore it. For those days I can't, this blog documents my journey.

Sunday, April 23, 2006

I have been racking my brain as to how the quote Walgreen's gave me yesterday could be accurate. Then, today, when I went to Target to get my birth c0ntrol filled, they also charged me full price. I am thinking that maybe Blue Cross doesn't have me in the computer as meeting my deductible yet. I just met it on Thursday, or something. So, let's hope.

If the medicine is $700/month, there will be no way. Seriously, no way. However, if I can get it down to about half that, I will try my hardest. I am sure we waste a lot of money going out to eat or on stupid stuff. Not sure exactly how much, but if we basically don't do anything that costs extra money, maybe, just maybe, we can find a way. I am not trying to sound pitiful, but I just really want this medicine. I mean, it slows the progression of MS. Without it, my progression rate is unknown. It's too early to tell how it is progressing on its own.

Today was kind of a bit unsettling. My equilibrium has been off all day. I haven't fallen, but I have kind of swayed and have been unsteady. I noticed it as I was drying my hair and as I was in the store.

A bit of a vent: today, someone asked Brad if we had come up with a plan, yet. Okay, we just found out on Friday that the medicine was THIS much. Most offices are closed throughout the weekend. So, what would that plan be? Sure, we have been thinking--at least I have. I have a few different avenues I plan on looking into. But why would someone be inclined to think that we have come up with a magical solution. There isn't a magical solution that I know of. So if you do know one--please share. Also, I think this person doesn't realize that all of the medicine is expensive. Yes, from what I know, Rebif tends to be "the best." However, it's not that I am just whining because I want the best medicine and can't have it. They all cost $1500 and upwards, and Rebif is the only to work in all three areas. Therefore, it's not as if I want the $2000 medicine, when there is an alternative for $100. It's just not that easy, kids.

And the steroids...I feel like I have a tape worm. By that, I mean, I am hungry all the time. I eat, and I am still starving. I have eaten fruit, but my body wants things that aren't nearly as good for me--like french fries and nachos. I want salty goodness. I ate 3/4 of a row of saltine crackers tonight. I need to watch it, or I will balloon up. But I am hungry, and not just a little. As in, even when I am sitting here working, all I can feel is my empty-feeling tummy.

I don't think anyone reads this. If they do, fine. If not, fine. But I am sure my counselor will be asking me what I have been thinking, and this is a way for me to look back and remember. In the meantime, if anyone is curious about what's been going on, they can know, too. But this is in no way an attention ploy.


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